Identifying Disparties Amoung Cancer Patients Seeking Fertility Preservation
Elizabeth Klonoff, Ph.D.
Hillary Klonoff-Cohen, Ph.D.
Life-saving cancer treatments such as chemotherapy, radiation, and surgery given during pediatric, adolescent, and young adult years often affect fertility, leaving many women unable to have a child. Consequently, a new field, fertility preservation (FP), was developed with the purpose of helping these young women overcome fertility issues. The number and characteristics of young women who use FP strategies are unknown, and this has been a barrier to progress in this field. Therefore, the primary aim is to determine the ethnic/racial background of those women who seek FP in California. To accomplish this major goal, approximately thirty fertility preservation sites will provide demographic, medical, and procedural information on patients pursuing and refusing FP. Furthermore, focus group discussions will be conducted to understand concerns and stresses during the FP process. Afterwards, we’ll develop and pilot-test a culturally competent concerns/stress questionnaire on ten female cancer patients. This pilot project will aid in understanding, evaluating, and improving care of diverse female cancer patients who seek fertility preservation.
Project Period: 9/1/2011 – 8/31/2012
Klonoff-Cohen HS. Establishing a Fertility Preservation Database: No Time like the Present. Expert Opinions in Obstetrics and Gynecology. May 2012:7(3);213-227.